Support Groups

GFPD Parent Support

 (Parents & Guardians only)

The GFPD Parent Support Group is a space for parents of individuals with peroxisomal disorders in the Zellweger spectrum and the related single enzyme protein deficiencies to connect, share their experiences and provide/receive peer to peer support.

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PBD Dads Support

(A Band of Brothers Dads only)

We are brothers and we are here for a purpose- to help in any way we can the brother who reaches out.

GFPD Bereaved Parents Support 

 (Parents & Guardians only)

This group is about simply listening, holding space, withholding judgment, emotionally connecting, and communicating that incredibly healing message of "You are not alone."

GFPD Adult Self Advocate Patient Group

Adult Advocates Only

The GFPD Adult Self Advocate Patient Support Group is a space for patients with peroxisomal disorders in the Zellweger spectrum and the related single enzyme protein deficiencies to connect, share their experiences, and provide/receive peer to peer support.

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GFPD Extended Family Support Group

 (For Extended Family only)

The Extended Family of the GFPD Support Group is a private space for extended family members of individuals who have peroxisomal disorders in the Zellweger spectrum and the related single enzyme protein deficiencies. Extended family members above the age of 18 years may use this space to connect, share their experiences, and provide/receive peer to peer support. ciencies, and their family.

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GFPD Public Facebook Page

Family. Research. Hope

To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and assisting families and professional through educational programs and support services.

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If you would like to join our online family support group, please email your name and information to: registry@thegfpd.org

 

The Global Foundation for Peroxisomal Disorders Parent Support Group is a space for families to connect and share experiences with PBD-ZSD. We intend to foster a community of support, promoting mutual respect and understanding without judgment. The GFPD respects the diverse backgrounds, religious beliefs, and experiences of each of our families and requires all members of the Parent Support Group to treat fellow members with respect. Comments and opinions expressed through social media & other communication outlets by members of our community are those of the individual and may not be attributed to the GFPD, the Board of Directors, or the Medical & Scientific Advisors. The GFPD will not tolerate abusive or alienating speech and will act accordingly where necessary.

 

Have questions about Peroxisome Biogenesis Disorders?  Visit: What are peroxisomal disorders? 

CONTACT

ADDRESS

P.O. Box 33238

Tulsa, OK 74153

CONTACT US

Email: contactus@thegfpd.org

phone: ‪(405) 418-6061‬

fax: 918-516-0227

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 Images on this site were contributed by families and may not be used without permission.

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