(Parents & Guardians only)

To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and assisting families and professional through educational programs and support services.

(A Band of Brothers Dads only)

To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and assisting families and professional through educational programs and support services.

 (Parents & Guardians only)

To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and assisting families and professional through educational programs and support services.

Family. Research. Hope

To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and assisting families and professional through educational programs and support services.

If you would like to join our online family support group, please email your name and information to: registry@thegfpd.org

 

The Global Foundation for Peroxisomal Disorders Parent Support Group is a space for families to connect and share experiences with PBD-ZSD. We intend to foster a community of support, promoting mutual respect and understanding without judgment. The GFPD respects the diverse backgrounds, religious beliefs, and experiences of each of our families and requires all members of the Parent Support Group to treat fellow members with respect. Comments and opinions expressed through social media & other communication outlets by members of our community are those of the individual and may not be attributed to the GFPD, the Board of Directors, or the Medical & Scientific Advisors. The GFPD will not tolerate abusive or alienating speech and will act accordingly where necessary.

 

Have questions about Peroxisome Biogenesis Disorders?  Visit: What are peroxisomal disorders? 

Beyond our private Facebook support groups, there are multiple ways to connect with the GFPD.
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Like our public Facebook page

Follow us on Twitter and Instagram

Sign up for the Natural History Study at McGill University

Email: pbd.genetics@mcgill.ca

Meet the GFPD family by visiting our YouTube Channel

© 2018 by GFPD. Proudly created by CAZ Media Design

 Images on this site were contributed by families and may not be used without permission.

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