About Us

We improve the lives of patients with peroxisomal disorders and their families.

We Provide Worldwide Support patients and families impacted with Peroxisomal Disorders. 

When the GFPD was incorporated and received its 501(c) (3) public charity designation in 2010, we were a small parent support group of approximately 50 families. Ten years later, the GFPD registry connects more than 600 families from 40 countries and we have a Scientific Advisory Board comprised of leading researchers and physicians in the field of peroxisomal disorders. Our biennial Family and Scientific Conferences bring together families and professionals from around the world to meet and collaborate on ways to improve the lives of patients with peroxisomal disorders.

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We are Helping Hands

Our Mission

To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

Our Work

Through these connections with medical and scientific professionals and family support networks, our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum

Our History

In the days before the GFPD was founded, families were just beginning to use the Internet to connect, discovering that other families like theirs were out there. John Harris moderated a website and an email list-serve for families 

 

40

Countries Reached

3,037

Supporters on Facebook

529

Registered Patients

575,000

2017 Scientific Initiatives

Take Action

Special Events


Do you want to host a dinner, gala, fun run, golf event, or any other type of ticketed event? The GFPD headquarters staff are here to help!

Do you have an event idea, but don’t know where to get started?

We are here to help bring your event idea to life! We can provide fundraising resources and GFPD branded materials to ensure that your event is a success.

Complete our fundraising form here to tell us about your event idea, and we will contact you to get started!




Family Event, Birthday or celebration


Donate your birthday to the GFPD and raise funds for peroxisomal disorder research!

Turn your birthday into a party with a purpose!

Facebook has made it easier than ever to create your own personal fundraising page! Funds collected through Facebook Fundraisers go directly to the GFPD, and Facebook covers all credit card processing fees so 100% of every dollar raised goes directly to peroxisomal disorder research.


Turn your next birthday or even a work happy hour into a celebration with a cause!

By turning your celebration into a fundraising event, you can help raise funds for peroxisomal disorders and bring hope to families all over the world.

Learn more..




Honor or Memorial


Donate in honor of a loved one or in memory of a special child lost to a peroxisomal disorder. Get started here.




Do it yourself fundraising


Almost anything can be turned into a fundraiser for peroxisomal disorder research! Do you have an idea not listed here? We are here to support you!

Bake sale, lemonade stand, fitness class, painting party, these are just a few of the ways families have created their own fundraisers for peroxisomal disorder research!

What did you have in mind? We have the tools to support you!

Complete the fundraising form here to tell us about your event idea, and we will contact you to get started!





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CONTACT

ADDRESS

P.O. Box 33238

Tulsa, OK 74153

CONTACT US

Email: contactus@thegfpd.org

phone: ‪(405) 418-6061‬

fax: 918-516-0227

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© 2020 by The GFPD. Designed by CAZ Media Design

 Images on this site were contributed by families and may not be used without permission.

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