GFPD News 

UNMC researcher heads $3.3 million national study

January 14, 2017

UNMC researcher heads $3.3 million national study

Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000 children nationwide may be affected. Some diseases are even more rare than that, he added.

Pause for PBD

January 14, 2017

Pause for PBD

Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis disorder (PBD) and how Tulsans can help support PBD research on October 5.

This unicorn wheelchair costume is truly magical

January 14, 2017

This unicorn wheelchair costume is truly magical

She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical costume this Halloween. But what makes Maddie Holt's costume extra special is that it was designed specifically for her wheelchair.


Texas Parents Calm Baby with Kisses Before Learning He's Blind: 'We Didn't Know What Was Wrong'

January 14, 2017


Texas Parents Calm Baby with Kisses Before Learning He's Blind: 'We Didn't Know What Was Wrong'

Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight — so his parents cuddle him with kisses


Peoria family promotes Rare Diseases Day for 7-year-old son

January 14, 2017


Peoria family promotes Rare Diseases Day for 7-year-old son

It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan got it so early in life.

Running for Riley Fun Run/Walk is another great race for a great cause

January 14, 2017

Running for Riley Fun Run/Walk is another great race for a great cause

Riley grew up playing at White Park, ringing the chimes and riding the swings, so it seemed like a natural fit for an event like this.

Letter to the Editor: Do an act of kindness to mark Pause for PBD

January 14, 2017

Letter to the Editor: Do an act of kindness to mark Pause for PBD

Peroxisomal Biogenesis Disorder (also known as Zellweger Spectrum Disorder), is a rare, genetic, condition affecting multiple organ systems in the body. PBD is generally fatal in childhood. As a parent, it is difficult to express the sense of loneliness and feelings of isolation that enter your life when your child has a rare, genetic disease that most people have never heard of and has no cure.

#PauseForPBD: A SLU Doctoral Student Shares His Son's Journey

January 14, 2017

#PauseForPBD: A SLU Doctoral Student Shares His Son's Journey

PBD-ZSD affects approximately one in 50,000 live births and while the exact number of individuals affected by this disorder is unknown, a few hundred families are currently connected through the Global Foundation for Peroxisomal Disorders (GFPD).

Letter: Pause for PBD, think of Ethan

January 14, 2017

Letter: Pause for PBD, think of Ethan

Oct. 5 is a special day for our family as we celebrate Pause for PBD, the annual awareness day for The Global Foundation for Peroxisomal Disorders (GFPD). Our son, Ethan, is seven years old and is one of 175 children known to the GFPD living worldwide with Peroxisome Biogenesis Disorder (PBD).

Jersey County Journal - Letter to Editor for Pause for PBD

January 14, 2017

Jersey County Journal - Letter to Editor for Pause for PBD

NJ mom to run Philly marathon to bring attention to rare disease

January 14, 2017

NJ mom to run Philly marathon to bring attention to rare disease

De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal disorders. The conditions are so rare that if 4 million children are born this year, less than 100 will have the disorder.

Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!

January 14, 2017

Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!

Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are important components of cells that help to metabolize lipids, or fatty acids.


Health on Earth Episode featuring Christine Yergeau of McGill University

January 14, 2017


Health on Earth Episode featuring Christine Yergeau of McGill University

Bloomington's Harmony Park will be a place for every kid to play

January 14, 2017

Bloomington's Harmony Park will be a place for every kid to play

Four nonprofits partner to develop inclusive playground

Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter's life

January 14, 2017

Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter's life

To remember their daughter and help other families who are in a similar situation, Christopher and Katina went to the governor hoping to have Oct. 5 selected as Peroxisomal Awareness Day.

After more than a year, the Rees' wish was granted.

Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit

January 14, 2017

Business Perspective with Melissa Bryce Gamble: Use this checklist to start your nonprofit

Melissa Bryce Gamble is president and co-founder of the Global Foundation for Peroxisomal Disorders, which serves over 400 families across the globe.

Family makes every moment count with terminal son

January 14, 2017

Family makes every moment count with terminal son

Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it to Christmas — the day after, he’ll be 8-months old, Mack said.

Newsmaker: Tulsa-based Peroxisomal foundation names director, board

January 14, 2017

Newsmaker: Tulsa-based Peroxisomal foundation names director, board

The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first executive director and appointed four new members to its board of directors.

Kick It For Max

January 14, 2017

Kick It For Max

Kick It For Max
A local high school soccer team is helping their coach’s family.


​Good Day Tulsa interview with Jen Kerckhoff and Emily Webb about Hues for Hope.

January 14, 2017


​Good Day Tulsa interview with Jen Kerckhoff and Emily Webb about Hues for Hope.

Support local baby Oct. 5 on Pause for the GFPD Awareness Day

January 14, 2017

Support local baby Oct. 5 on Pause for the GFPD Awareness Day

Archer is one of fewer than 1,000 children living worldwide with PBD-ZSD.
That is why Archer’s family is grateful for GFPD and the dedication they have to learning more about this rare disorder.

CONTACT

ADDRESS

P.O. Box 33238

Tulsa, OK 74153

CONTACT US

Email: contactus@thegfpd.org

Phone: ‪(405) 418-6061‬

Fax: (918) 516-0227

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