Committee Sign Up
If you are interested in becoming involved in the work of the GFPD, join one of the committees below.
The GFPD has several different committees that you can join.
Community Advisory Council- The CAC (otherwise known as the Community Advisory Council) is made up of GFPD families and other members of our global community including educators and deaf-blind professionals. The goal of the CAC is to help ensure that the programming of the GFPD is family-centric.
Conference Planning Committee- The GFPD Conference Planning Committee helps guide and assist the board, staff, and contractors in developing the strategic plan for the GFPD International Family and Scientific Conferences.
Development Committee- The GFPD Development Committee focuses on providing GFPD families with ideas and support for hosting their own local fundraisers. With the spread of COVID-19, many of our 2020 fundraisers have been canceled or indefinitely postponed, and the Development Committee is searching for creative ways to fundraise in the midst of the pandemic.
Finance Committee- Finance Committee helps guide the financial strategy for our organization.
Scientific Initiatives Committee- The SIC was formed in late 2016 to help expand the scientific initiatives of the GFPD and to fund promising research projects with the potential to help improve the quality of life of patients with peroxisomal disorders.
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2017 Scientific Initiatives
We are Helping Hands
The mission of the GFPD is to fund and promote peroxisome disorder research and to empower families and professionals through educational programs and support services related to Zellweger spectrum disorders.
Through these connections with medical and scientific professionals and family support networks, our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum
In the days before the GFPD was founded, families were just beginning to use the Internet to connect, discovering that other families like theirs were out there. John Harris moderated a website and an email list-serve for families