• 1 in 10 people is diagnosed with a rare disorder. That’s more than cancer and AIDS combined.
     

  • Peroxisomal disorders are rare, genetic disorders that are usually terminal in childhood.
     

  • Peroxisomes are part of the cell, which affects every system in your body. Patients with
    peroxisomal disorders typically experience deafness, blindness, global developmental delays, adrenal insufficiency, neurological issues, and feeding issues.

     

  • 95% of rare diseases have no FDA approved drug treatment
     

  • In 2010 we had 48 patients on our family registry.  As of the fourth quarter of 2018, we now have 495 patients on our family registry.
     

  • In 2010 we had 18 countries represented on our patient registry.  As of 2018, we now have 39 countries represented on our patient registry.
     

  • The first family meetups were held in four cities in 2018: Washington D.C., St. Louis, Dayton, and Salt Lake City, with 135 total attendees.
     

  • GFPD was the recipient of a $15,000 research grant from Global Genes to help fund our ZSD Focus Group, conducted by Dr. Mousumi Bose, Montclair State University.
     

In collaboration with Wynn Mattefy Research Foundation and Rhizokids International, the GFPD funded a grant to Dr. Michael Wangler, Baylor College of Medicine, in support of his Metabolomic Signature of Peroxisome Biogenesis Disorders project.

© 2018 by GFPD. Proudly created by CAZ Media Design

 Images on this site were contributed by families and may not be used without permission.

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