Tulsa, Oklahoma Charitable Event - Hues for Hope

July 23, 2018

 

Tulsa Fundraiser

 

Hues for Hope  is the inaugural, signature benefit for The Global Foundation for Peroxisomal Disorders (GFPD).  Hues for Hope will raise money and spread awareness for a rare, terminal childhood disorder.  Friday, October 5th, is also the GFPD's annual awareness day, #PauseforPBD.

 

The Pearl District Building

 

The Pearl District Building is the perfect venue for Hues for Hope’s art themed fundraiser. Hues for Hope will feature original art created by Oklahoma artists and families impacted by peroxisomal disorders that will be auctioned off. Local artists include Aaron Whisner, the artist who painted the famous Woody Guthrie street mural, John Hammer, students from Street School, and many more. Co-emcees for the night include Kacy-Jess Termini, morning show host on Mix96.5, and Mike Collier, Chief Meteorologist, KJRH-Channel 2 Works for You.

 

In addition, events will include a raffle, auction, live painting, dinner, and an open bar.

 

Did you know that 1 in 10 people in the United States have a rare disease?

 

Global Foundation for Peroxisomal Disorders (GFPD) was founded to improve the life of every individual living with a peroxisome disorder through groundbreaking research and patient and family support. Peroxisomal biogenesis disorder-Zellweger spectrum disorders (PBD-ZSD) are rare, genetic disorders that are almost always terminal in childhood.  Peroxisomal disorders impact almost every system in the body. There is currently no treatment or cure. The GFPD now connects over 400 families from around the world, so that no one has to face this disease alone.

 

Hues for Hope

 

Hues for HOPE will celebrate the beautiful children affected by a rare, terminal condition and raise funds to accelerate treatment options for peroxisomal disorders. Funds raised from Hues for Hope will help support medical research, connecting affected families through support groups and family meetups, international conferences, and equipment exchanges for families.

 

 

For more information

 

To stay up to date on the Hues for Hope’s news, follow us on social media on Facebook and Instagram @HuesforHope.

 

For further reading on peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD).

 

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