GFPD President on Rare Disease Fundraising and the Ice Bucket Challenge

GFPD President, Shannon Butalla, recently shared some thoughts on the Ice Bucket Challenge benefiting ALS research, and on the work of generating awareness for rare diseases. Read her comments in the Lincoln Journal Star:

http://journalstar.com/news/local/cindy-lange-kubick-going-beyond-the-ice-bucket/article_f42da061-e6c4-50d1-8ef6-f82d8bd3e5cc.html

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GFPD President on Rare Disease Fundraising and the Ice Bucket Challenge

Featured Posts

Anna Violet's journey to a peroxisomal disorder diagnosis | GFPD 2020 Patient Ambassador

Meet 2020 Patient Ambassador, Anna Violet

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Recent Posts

#PAUSEforTheGFPD

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Mother's Day

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