April 20, 2014
Sixteen month old Madeline Holt is in the news, along with her mother Meagan. Meagan is the 2014 Snohomish County March for Babies Ambassador in Washington state.
Read about the Holt family here: http://edmondsbeacon.villagesoup.com/p/march-for-babies-ambassador-inspires-hope/1168766
And read more about the diagnosis and impacts of Peroxisomal Biogenesis Disorder – Zellweger Spectrum Disorder here: http://www.thegfpd.org/for-doctors/for-doctors and here: http://www.thegfpd.org/for-doctors/for-therapists
What is Zellweger Syndrome?
Why don’t we call it Zellweger syndrome anymore?
July 23, 2018
In a years-long effort, GFPD Family and Scientific Liaison Dr. Mousumi Bose has headed up a collaborative project with the GFPD Medical and Scientific...
PBD-ZSD Treatment Guidelines published in collaboration with GFPD
January 5, 2016
PAUSE for PBD 2019! #PauseforPBD
September 5, 2019