April 20, 2014
Sixteen month old Madeline Holt is in the news, along with her mother Meagan. Meagan is the 2014 Snohomish County March for Babies Ambassador in Washington state.
Read about the Holt family here: http://edmondsbeacon.villagesoup.com/p/march-for-babies-ambassador-inspires-hope/1168766
And read more about the diagnosis and impacts of Peroxisomal Biogenesis Disorder – Zellweger Spectrum Disorder here: http://www.thegfpd.org/for-doctors/for-doctors and here: http://www.thegfpd.org/for-doctors/for-therapists
A bereaved mom's thoughts on grief during the Holidays.
December 15, 2019
Family. Research. Hope.
September 21, 2016
Meet 2020 Patient Ambassador, Anna Violet
January 18, 2020