April 20, 2014
Sixteen month old Madeline Holt is in the news, along with her mother Meagan. Meagan is the 2014 Snohomish County March for Babies Ambassador in Washington state.
Read about the Holt family here: http://edmondsbeacon.villagesoup.com/p/march-for-babies-ambassador-inspires-hope/1168766
And read more about the diagnosis and impacts of Peroxisomal Biogenesis Disorder – Zellweger Spectrum Disorder here: http://www.thegfpd.org/for-doctors/for-doctors and here: http://www.thegfpd.org/for-doctors/for-therapists
Meet 2020 Patient Ambassador, Anna Violet
January 18, 2020