NORD Provides New State Insurance InformationNORD Provides New State Insurance Information

The National Organization for Rare Disorders (NORD) has issued an interactive map detailing state-specific information about the upcoming changes to the Insurance Marketplace. Changes take place on October 1st.

View the NORD Interactive Map

Featured Posts

Anna Violet's journey to a peroxisomal disorder diagnosis | GFPD 2020 Patient Ambassador

Meet 2020 Patient Ambassador, Anna Violet

A bereaved mom's thoughts on grief during the Holidays.

PAUSE for PBD 2019! #PauseforPBD

What is Zellweger Syndrome? Why don’t we call it Zellweger syndrome anymore?

Scientific collaboration bringing GFPD Conference to Washington, DC this summer

Please join our family at the GFPD Conference in Washington, DC this summer

GFPD/STAIR Collaboration Invites Patient Input in Research

GFPD Fall 2016 Newsletter

My experience attending the 2016 Deafblind Symposium

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#PAUSEforTheGFPD

Happy First Day of Summer!!

Building our Little Room – Follow up from “Discovering Our Connections- GFPD Virtual Meetup”

History of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD) Terminology

Mother's Day

Honoring Our Bereaved Mothers

GFPD "Sensing Connections" Grief Support Group | Remembrance & Support

Natalie and Gwendolyn's Rare Disease Week wrap up

Spring update from GFPD Patient Ambassador, Anna Violet

Anna Violet's journey to a peroxisomal disorder diagnosis | GFPD 2020 Patient Ambassador

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NORD Provides New State Insurance InformationNORD Provides New State Insurance Information

Featured Posts

Anna Violet's journey to a peroxisomal disorder diagnosis | GFPD 2020 Patient Ambassador

Meet 2020 Patient Ambassador, Anna Violet

A bereaved mom's thoughts on grief during the Holidays.

PAUSE for PBD 2019! #PauseforPBD

What is Zellweger Syndrome? Why don’t we call it Zellweger syndrome anymore?

Scientific collaboration bringing GFPD Conference to Washington, DC this summer

Please join our family at the GFPD Conference in Washington, DC this summer

GFPD/STAIR Collaboration Invites Patient Input in Research

GFPD Fall 2016 Newsletter

My experience attending the 2016 Deafblind Symposium

Recent Posts

#PAUSEforTheGFPD

Happy First Day of Summer!!

Building our Little Room – Follow up from “Discovering Our Connections- GFPD Virtual Meetup”

History of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD) Terminology

Mother's Day

Honoring Our Bereaved Mothers

GFPD "Sensing Connections" Grief Support Group | Remembrance & Support

Natalie and Gwendolyn's Rare Disease Week wrap up

Spring update from GFPD Patient Ambassador, Anna Violet

Anna Violet's journey to a peroxisomal disorder diagnosis | GFPD 2020 Patient Ambassador

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