September 28, 2013
The National Organization for Rare Disorders (NORD) has issued an interactive map detailing state-specific information about the upcoming changes to the Insurance Marketplace. Changes take place on October 1st.
View the NORD Interactive Map
What is Zellweger Syndrome?
Why don’t we call it Zellweger syndrome anymore?
July 23, 2018
In a years-long effort, GFPD Family and Scientific Liaison Dr. Mousumi Bose has headed up a collaborative project with the GFPD Medical and Scientific...
PBD-ZSD Treatment Guidelines published in collaboration with GFPD
January 5, 2016
PAUSE for PBD 2019! #PauseforPBD
September 5, 2019