Natural History Study of Peroxisomal Biogenesis Disorders
GFPD is assisting Dr. Nancy Braverman, M.S., M.D. (Associate Professor Depts. of Human Genetics and Pediatrics McGill University-Montreal Children’s Hospital) with her efforts to recruit patients for a Longitudinal Natural History Study of Peroxisomal Biogenesis Disorders.
For more information, please visit www.clinicatrials.gov, a service of the U.S. National Institute of Health or follow this direct link. If you are a parent/guardian of a child or adult with a Peroxisomal Biogenesis Disorder and wish to be involved in the study, please print off the Natural History Study Consent Form and Photo Release and mail original signed copies to: GFPD- 5147 S. Harvard Ave. Suite 181 – Tulsa, OK 74135.
If you have any questions about the Natural History Study or your involvement in it, please contact Melissa Gamble by email at firstname.lastname@example.org. This study is open to all families in the US and Canada with living and/or deceased children.