The Global Foundation for Peroxisomal Disorders is assisting Dr. Nancy Braverman, M.S., M.D. (Associate Professor Depts. of Human Genetics and Pediatrics McGill University-Montreal Children’s Hospital) with her efforts to recruit patients for a Natural History Study of Peroxisomal Biogenesis Disorders.
For more information, please visit: http://clinicaltrials.gov/ct2/show/study/NCT01668186?term=peroxisome+biogenesis+disorder&rank=1
If you are a parent/ guardian of a child or adult with a Peroxisomal Biogenesis Disorder and wish to be involved in the study, contact Melissa Gamble by email at melissa@thegfpd.org