Pound the Pavement for PBDs- Tulsa, Ok- “Jogging for Ginny”

September 26, 2011

Pound the Pavement for PBDs is the official Run/ Walk Fundraising Event for the Global Foundation for Peroxisomal Disorders. Pound the Pavement for PBDs events are held in communities across the world to raise awareness of Peroxisomal Biogenesis Disorders and funds for the Global Foundation for Peroxisomal Disorders.

 

The Pound the Pavement for PBDs event in Tulsa, Ok also known as “Jogging for Ginny” will be held October 28th and 29th, 2011. This is the second year for “Jogging for Ginny”- and this year we are very excited to have 2 special events to raise money for GFPD.

 

October 28th, 2011
“Get Your Carb On”- Spaghetti Dinner
5:30 p.m. to 8:30 p.m.
At the Home of Scott and Allie Moore (Uncle and Auntie of Ginny Gamble)
*** for address please email alliebrycemoore@gmail.com****
Please join us for a spaghetti dinner to “Get Your Carb On” the night before the Tulsa Run. We will have spaghetti, salad and breadsticks (catered by Olive Garden), the Famous Moore Family Chocolate Sheet Cake, and adult beverages to quench your thirst!
Cost- $7 Adults $4 kiddos
Please reserve your spot at this fun event by emailing alliebrycemoore@gmail.com

 

October 29th, 2011
Pound the Pavement for PBDs- AKA “Jogging for Ginny” @The Tulsa Run
15km and 5km Race and 2 km Fun Run
8:00 a.m.


Jogging for Ginny is a family event -although no strollers are allowed ;( – hosted and timed by The Tulsa Run. Our Jogging for Ginny team will don our hot pink shirts and run our hearts out for our Sweet Ginny Girl! Pick the race that works for your skill level and join us at the Jogging for Ginny Tent near the finish line either before and/ or after your race for yummy goodies and pictures with Ginny Girl! You will need to register for the Tulsa Run online at www.tulsarun.com or in person at the Tulsa Run office on the southeast corner of 51st and Harvard (office is just to the west and adjacent from Food Pyramid). The entry fee for the Tulsa Run has increased this year It is now $35- and you will need to pay that directly to the Tulsa Run. The cost to be a member of our Jogging for Ginny Team is $20 per person (payable to GFPD). Your team membership of $20 entitles you to an awesome hot pink Jogging for Ginny Team Shirt, goodies after the race, and an official Jogging for Ginny Team Photo. Non- runners are welcome to also join our team, get team shirts, and join us at the Jogging for Ginny Tent to cheer on our team!

 

In addition to the spaghetti dinner and Jogging for Ginny Team membership- we are also accepting general donations to GFPD at these events. Please consider making a tax-deductible donation to GFPD in honor of sweet Ginny Girl. Every little bit helps! Your contribution will help fund research underway on Peroxisomal Biogenesis Disorders at USC, University of Nebraska Medical Center, Johns Hopkins University, and McGill University and support families through our online support group, equipment exchange, and by funding scholarships for families and medical professionals to our annual Conference. Thank you in advance for your support and help! To pay for the spaghetti dinner, a Jogging for Ginny team membership, or to make a general donation to GFPD please click the link to the right. Checks may also be sent to: GFPD Attn: Jogging for Ginny 5147 S. Harvard Ave, Suite 181 Tulsa, Ok 74135

 

A NOTE FROM BRANT AND MEL-

We are jogging for Ginny because on May 24, 2010, we got news that would change our lives forever. We learned that our sweet Ginny Girl then 21 months old, was born with a rare, genetic, progressive and terminal condition called Peroxisome Biogenesis Disorder. In the days and weeks that followed, we felt so alone, so lost. In July of 2010 we were able to connect via the internet with other families on this same journey- but I (Mel) knew we had to do more than simply “connect” with these other families on facebook. We had to do something to unite ourselves around one cause to create a stronger community and as a result have a stronger voice in the medical and scientific community.

 

Thanks to the support of our family and friends here in Tulsa, GFPD was born. We were incorporated in Oklahoma October 5, 2010 and received our tax exempt determination from the IRS shortly thereafter. Since incorporation we’ve accomplished more than we could have ever imagined! We have elected a 7 member Board of Directors and a prestigious 9 member Medical and Scientific Advisory Board. We have grown our online support groups via yahoo and facebook. We’ve compiled information in our PBD Family registry on nearly 200 families affected by this disorder around the world. We’ve instituted an equipment exchange program so families that are no longer using medical equipment can send it to other families that desperately need it. We’ve created an information website to be a resource for physicians and families. And we hosted our first annual Family and Scientific Conference in Omaha, Nebraska bringing together families and physicians from the US, Canada, and Australia.

 

Ginny’s disorder has changed our lives in so many ways. It’s effected our plans to have a “normal” life. It’s effected our plans to have a family- because this disorder is genetic- we have a 1/4 chance of having another child with PBD. It’s effected our day to day life as we deal with therapy and never ending medical appointments.

 

However, it has caused us to treasure every day we have with our sweet girl. It’s given us a new outlook on what’s really important in life. And because of Ginny, The Global Foundation for Peroxisomal Disorders was born. GFPD has helped so many families in it’s short life (ours included)- and with your help the good work of this foundation will continue. Please partner with us and make a contribution to GFPD in honor of Ginny. I thank you, Brant thanks you, Ginny thanks you, and the other 200 families that are battling this disorder thank you.

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