Press Releases

All of The GFPD's press relseases will be posted here.

May 29, 2018

NIH Director Francis Collins Returns as Speaker and Musical Guest at GFPD Scientific Conference


The Director of the National Institutes of Health, (NIH) will deliver an address at the Closing Dinner of  2018 Scientific Conference of The Global Foundation for Peroxisomal Disorders (GFPD) as well as share the gift of hope through music.  This unique gathering of over 40 of the world’s leading rare disease researchers, scientists and specialists as well as family participants at the GFPD Regional Family Meetup aims to facilitate collaborative research and accelerate treatments for patients suffering from peroxisomal disorders, a group of rare, genetic conditions that are fatal in childhood.

March 19, 2018

The Global Foundation for Peroxisomal Disorders, the Wynne Mateffy Research Foundation, and RhizoKids International award a $75,000 Research Grant in Effort to Accelerate Treatment Options for Rare Diseases

The Global Foundation for Peroxisomal Disorders Awards (GFPD), the Wynne Mateffy Research Foundation (WMRF), and RhizoKids International award a $75,000 research grant to Dr. Michael F. Wangler, Baylor College of Medicine. In an effort to accelerate treatment options for rare diseases, the GFPD is proud to partner with WMRF and RhizoKids International to create a metabolomics resource for peroxisomal disorders and related conditions such as D-bifunctional protein deficiency and Rhizomelic chondrodysplasia punctata (RCDP).

March 19, 2018

Local Family Holds Benefit to Fight for Awareness and Funding for Extremely Rare Disease

An annual event to raise money in the battle against a rare childhood disorder will be held May 18-19 at Illinois State University, in honor of a local child, Max Chapman, who suffers from a rare, genetic, terminal disease.

March 13, 2018

Health on Earth episode featuring Christine Yergeau, Clinical Research Coordinator in Dr. Nancy Braverman's Peroxisome Disease lab at the Hôpital de Montréal pour enfants - Montréal Children's Hospital.

January 30, 2018

The Global Foundation for Peroxisomal Disorders Awards and Wynne Mateffy Research Foundation award $120,000 in Research Grants in Effort to Accelerate Treatment Options for Rare Disease

The Global Foundation for Peroxisomal Disorders (GFPD) and the Wynne Mateffy Research Foundation (WMRF) announce $120,000 in grants to two research labs. The grants include funding to address neurodegeneration and vision loss in Peroxisomal Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD), as well as a project studying the drugs diosmetin and betaine, and their efficacy in increasing peroxisome function.

January 30, 2018

The Global Foundation for Peroxisomal Disorders Announces New Executive Director and Board of Directors Changes

January 30th, 2018: For Immediate Release

The Global Foundation for Peroxisomal Disorders Announces New Executive Director and Board of Directors Changes

 

Tulsa, OK— The Global Foundation for Peroxisomal Disorders announces the selection of Melissa Bryce Gamble as its first executive director, the appointment of four new members to its Board of Directors, as well as the transition of longtime board member, Mousumi Bose PhD, from its Board of Directors to the GFPD Scientific Advisory Board. (....)

July 06, 2017

NIH Director Francis Collins Announced as Keynote Speaker at GFPD Family & Scientific Conference

The GFPD announces Francis Collins, Director of the NIH, as Keynote Speaker at the 2017 GFPD Family and Scientific Conference July 13-17 in Washington D.C. His keynote address, “Therapeutic Development for Rare Disease: Challenges and Opportunities,” will highlight the progress, current research and treatments still needed for peroxisomal disorders which are rare, genetic, multi-system diseases that are usually terminal in early childhood.

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For press inquiries, contact:

Jen Kerchoff:

918-810-6908

jen@resolutepr.com

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