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After learning that her daughter, Ginny, was diagnosed with a Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD), Melissa Bryce Gamble set out to find other parents facing a similar fate.
What she found was a small community of parents corresponding via email and supporting one another as they navigated a lonely diagnosis. Melissa’s desire to raise funds for research, support families and promote awareness of PBD-ZSD led to the formation of the Global Foundation for Peroxisomal Disorders (GFPD) in October of 2010.
Melissa served as Treasurer of the GFPD from 2010-2015. She served as President of the GFPD from 2015-2017, overseeing GFPD staff and volunteers in Tulsa, Oklahoma. She now serves as the Executive Director.
Her daughter, Ginny, passed away April 25, 2015, at the age of 6 1/2 from the degenerative effects of PBD-ZSD after a long and valiant battle. Melissa is also a mother to Jack and Avery. Along with her husband, Brant, Melissa strives to honor Ginny's memory through her work with The GFPD and as an advocate for children and adults facing rare diseases.
Melissa Bryce Gamble
Amie White is the GFPD's Communications Consultant. Amie has been part of the extended GFPD family after Ainsley, daughter of her friends Heidi and Kato, was diagnosed with a peroxisomal disorder in 2011. In 2016, Amie donated her time and skills to create the GFPD’s updated logo and has since developed many of our printed materials and T-shirts designs. She will be expanding her role to include social media management and brings knowledge from her previous position as Art Director for PAWS Chicago.
Amie is also mom to a rare kid! Her oldest daughter Zoey was born with a rare condition called symbrachydactyly, a limb difference affecting her right hand. Along with Zoey, Amie lives with her husband David, youngest daughter Maisie and a scruffy mutt named Wendell.
Jackie graduated from Boise State University with a Masters Degree in Accounting. While obtaining her Master's Degree, she worked as an internal auditor for Boise State University performing internal control and fraud-related audits and reviews.
In January of 2009, she moved to Tulsa to join a local CPA firm, Sartain Fischbein & Co., where she worked as an auditor performing financial statement audits for a variety of industries, including several not-for-profit organizations in the Tulsa area.
In January of 2016, Jackie joined the GFPD team as the GFPD's Accountant. Jackie is a CPA, but most importantly she is a wife and a mother to 3 wild boys and a Bama Doggy.
Chief Financial Officer
Taylor Costello Graduated from California Baptist University with her Bachelors's degree in Psychology. After pursuing a career in Personal Training, Taylor gave birth to her daughter Lily.
Lily Reagan Costello was born on February 25, 2018, with a peroxisomal biogenesis disorder. After 5 beautiful months with, Lily passed peacefully on July 19th, 2018.
After the passing of her daughter, Taylor sought out to help fill a gap for parents of medically fragile children. On October 1st, 2018, Lily's List was born.
Lily’s List is a nonprofit organization that provides a box of supplies for children who have home health nursing. This box of supplies is called the "Love Box". These supplies are items our board has deemed as essential in the home health lifestyle.
During the 2020 COVID-19 Pandemic, Taylor joined the GFPD team to assist in operations for the GFPD.
Taylor lives with her husband Joey, unaffected daughter Lucy, and her Flat-Coated Retriever Piper.
Katie has 20 years of experience in healthcare administration and 20 years of lived experience as a parent to a son, TJ, living with deaf-blindness and multiple disabilities caused by peroxisomal biogenesis disorder-Zellweger spectrum disorder. Katie is passionate about empowering others through advocacy, family support, and working with patients and families to bridge the gap between the family and professionals. Katie has a unique blend of experiences, including training in leadership, deafblind intervention through East Carolina University, advocacy and lobbying, person-centered planning and facilitation through Perkins School for the Blind, customized employment, communication through touch, calendar systems, special education law, family engagement, and transition to adulthood.
Katie successfully created and implemented a webinar series and virtual support groups for bereaved and non-bereaved families for the GFPD. She continues to present, facilitate, and host events on varying topics related to individuals with a peroxisomal disorder, multi-sensory impairments, and on her experiences as a parent and caregiver. She currently resides in Myrtle Beach, SC with her husband, son, and a very spoiled blue heeler named Ember.
Family Education and Engagement Liaison
Jen Kerckhoff is a Tulsa native and marketing and PR professional. Upon moving back to Tulsa in 2016, Jen became involved in the GFPD as a member of our Board of Directors. Jen was the guiding force behind making the GFPD's annual awareness day, Pause for PBD - now known as Pause for the GFPD- an engaging worldwide awareness event for families all around the globe. Additionally, Jen was the founding chair of Hues for HOPE- initiated in 2018 as the GFPD's signature Tulsa fundraiser. Jen loves Tulsa, loves our philanthropic community, and loves making a difference for kids around the world impacted by peroxisomal disorders. Today, Jen coordinates the Hues for HOPE event held in Tulsa each fall and keeps up with her twin 6-year-old girls by drinking as much java as possible.