Important Links

Information and Resources for other Peroxisomal Disorders

Acyl-CoA Oxidase Deficiency

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Peroxisomal Acyl-CoA Oxidase Deficiency

D-Bifunctional Protein Deficiency

D-Bifunctional Protein Deficiency

X-Linked Adrenoleukodystrophy (X-ALD)

Patient Advocacy and Research Foundations

United Leukodystrophy Foundation

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Australian Leukodystrophy Support Group

European Leukodystrophy Foundation

Axel Foundation

ALD Life

National Consortium on Deaf-Blindness

National Organization for Rare Disorders (NORD)

Additional Resources

Fundacion Lautarote Necesita

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Global Genes: RARE Toolkits

Make-A-Wish Foundation

Intervener

Gentle Labs carrier testing

Counsyl

Axel's Metabolic Disorder (educational comic book created by

Axel Foundation)

Sterol & Isoprenoid Research Consortium (STAIR)

Wangler Lab at Baylor College of Medicine