February 5, 2019

When Archer was born, he had difficulty nursing and gaining weight and was diagnosed with failure to thrive. We began to supplement with formula, but his weight gain remained slow and minimal. We didn’t know he had pbd at that time.

As he’s grown he has expanded his pal...

July 23, 2018

What is Zellweger syndrome?

Zellweger syndrome is the most severe form of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD). Peroxisomal disorders are rare, genetic, terminal conditions that affect all major organ systems of the body. A peroxisomal di...

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