February 5, 2019
Ashley, Archer's mom
When Archer was born, he had difficulty nursing and gaining weight and was diagnosed with failure to thrive. We began to supplement with formula, but his weight gain remained slow and minimal. We didn’t know he had pbd at that time.
As he’s grown he has expanded his pal...
What is Zellweger Syndrome?
Why don’t we call it Zellweger syndrome anymore?
July 23, 2018
In a years-long effort, GFPD Family and Scientific Liaison Dr. Mousumi Bose has headed up a collaborative project with the GFPD Medical and Scientific...
PBD-ZSD Treatment Guidelines published in collaboration with GFPD
January 5, 2016
PAUSE for PBD 2019! #PauseforPBD
September 5, 2019