Family is at the heart of the GFPD

"You may often hear or see the phrase “GFPD is family,” and I fully and wholeheartedly support that statement. Our family is united through a rare, devastating disease known as PBD, and it includes more than 540 families throughout 39 countries. We are a varied group comprised of parents, extended family members, friends, doctors, scientists, and researchers. A vital function of family is that it provides support and encouragement, and this is what our GFPD family does. I have said it before, but the GFPD conferences are like a big family reunion, even with families we are meeting for the first time. Our family leaves these conferences with a renewed sense of solidarity and community. Wi

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CONTACT

ADDRESS

P.O. Box 33238

Tulsa, OK 74153

CONTACT US

Email: contactus@thegfpd.org

phone: ‪(405) 418-6061‬

fax: 918-516-0227

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© 2020 by The GFPD. 

 Images on this site were contributed by families and may not be used without permission.

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