Patient Ambassador Archer - DEXA Bone Scan 2019

Ashley, mom of 2019 Patient Ambassador Archer, shares their family's experience of taking Archer for DEXA bone density scans to monitor his bone mineral density. "The list of ways how peroxisomal disorders can affect children’s health is a long one. Along with feeding/nutrition, liver, hearing, vision, neurological function, teeth, adrenal insufficiency, and kidney issues, children with PBD-ZSD can experience decreased bone mineral density that worsens over time. Although this is a scary possibility because it occurs slowly and can lead to pain, bone fractures, and decreased/loss of mobility (if present), the good news is that successful treatment has been reported using bisphosphonate infus

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