What is Zellweger Syndrome? Why don’t we call it Zellweger syndrome anymore?

What is Zellweger syndrome? Zellweger syndrome is the most severe form of peroxisome biogenesis disorder-Zellweger spectrum disorder (PBD-ZSD). Peroxisomal disorders are rare, genetic, terminal conditions that affect all major organ systems of the body. A peroxisomal disorder on the Zellweger spectrum (formerly referred to as Zellweger syndrome) means that the peroxisomes in your cells aren’t working properly, are absent, or are severely decreased. Peroxisomes are necessary for cell function, normal brain development, and the formation of myelin. What’s in a name? Zellweger syndrome is the most commonly known peroxisomal disorder. It is named after Hans Zellweger, a pediatrician and professo

Tulsa, Oklahoma Charitable Event - Hues for Hope

Tulsa Fundraiser Hues for Hope is the inaugural, signature benefit for The Global Foundation for Peroxisomal Disorders (GFPD). Hues for Hope will raise money and spread awareness for a rare, terminal childhood disorder. Friday, October 5th, is also the GFPD's annual awareness day, #PauseforPBD. The Pearl District Building The Pearl District Building is the perfect venue for Hues for Hope’s art themed fundraiser. Hues for Hope will feature original art created by Oklahoma artists and families impacted by peroxisomal disorders that will be auctioned off. Local artists include Aaron Whisner, the artist who painted the famous Woody Guthrie street mural, John Hammer, students from Street Schoo

Featured Posts
Recent Posts
Archive
Search By Tags
Follow Us
  • GFPD Facebook
  • GFPD Youtube

CONTACT

ADDRESS

P.O. Box 33238

Tulsa, OK 74153

CONTACT US

Email: contactus@thegfpd.org

phone: ‪(405) 418-6061‬

fax: 918-516-0227

  • Facebook
  • Twitter
  • YouTube
  • Instagram

© 2020 by The GFPD. 

 Images on this site were contributed by families and may not be used without permission.

guide-Star-Seal2018-gold-grey.png
2018-Nord-Member-grey.png
GFPD-Logo.png