Rare Disease Day

The GFPD is excited to once again be a Rare Disease Day partner. Rare Disease Day began in 2008 with the mission to raise awareness throughout the world about rare diseases and their impact on patients’ lives. Rare diseases are often not well understood and research is almost always underfunded. By focusing on all rare diseases, Rare Disease Day has become an important part of building awareness among policy makers and health professions to fund deeper research into diseases. 1 out of 10 people will live with a rare disease at some point in their life, and there are still many diseases that are unknown. Rare Disease Day encourages researchers and health professionals to address the needs of

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P.O. Box 33238

Tulsa, OK 74153


Email: contactus@thegfpd.org

phone: ‪(405) 418-6061‬

fax: 918-516-0227

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 Images on this site were contributed by families and may not be used without permission.