It was Christmas time. I was opening a box of decorations and as I looked in the box there it was, wrapped in paper among all the others. I pulled the paper away and paused when I saw the words “Baby’s 1st Christmas”. My heart sank and the tears fell as my mind reflected on the reality that it was baby’s only Christmas. How were we going to get through the holidays? It’s been 4 years since our sweet son passed away. He was born with a rare disease called Zellweger Syndrome.
This year, we wanted to do something to honor our son, Thomas, and all the children facing PBD-ZSD. We had great support from our community! I made a short video that explains the symptoms of our son's illness and I went to school and showed it to the entire school. Then, the students had to donate a minimum of $ 5 to walk in honor of Thomas ("On marche pour Thomas"). They successfully raised over $3000 CAD to be awarded to the GFPD. We rewarded the students by giving them