Connection to other PBD families brings Montesclaros family back to 2017 Family and Scientific GFPD

The GFPD Family & Scientific Conference is for everybody – families with living children with PBD, and those with children who have passed, plus their extended families, friends, and anyone who cares about a family affected by peroxisome biogenesis disorders. Programming at our conferences runs the gamut from panels with scientific researchers, clinicians, and educators; caregiver roundtables; sibling sessions; and group support for all families. I asked one bereaved mother of a child with PBD what brings her back to our conferences, even though her child is no longer living. Raissa, thanks for helping paint a picture of what the conference means to you. What makes you come back to the GFPD

Running for Riley to benefit the GFPD

Sunday, June 11th, the residents of Concord, NH will come together at White Park to raise awareness and help celebrate the strength and courage of Riley Duquette in the first annual Running for Riley race. Riley was diagnosed with Zellweger Spectrum Disorder soon after his birth, an extremely rare genetic condition that affects all the major systems of his body. Riley’s stepdad and event planner Shawn Moseley tells us, “our family has put together this event to help raise awareness for those families affected by rare diseases, and to celebrate the health of those fortunate enough to participate.” Many organizations, businesses, and individuals have helped put this event together. Moseley sha

Blog on the Go

With Wix Blog you can do everything from your phone: write posts, follow members, manage comments & more. After you publish simply go to your live site on mobile and log in with with your Wix account. Front row at a fashion show? Just ate the best pasta ever? Tell the world right away! You can post anywhere, anytime from your phone whenever inspiration strikes. Create new posts, edit existing ones, save drafts or publish - you can do it all, even when you’re away from your desk. Your work will automatically look and work great on both desktop and mobile. #vacation

Organize Your Blog With Categories

Categories are a great way to keep your posts organized. They also help visitors explore more content that interests them. Every time you write a post, you can add it up to 3 different categories. Those categories will then appear in your blog’s navigation menu, so choose categories that you normally post about and also serve as the main topics of your blog, e.g., Food, Fashion, Travel, etc. Each category of your blog has its own page that’s fully customizable. Add a catchy title, a brief description and a beautiful image to the category page header. Here’s a tip: For easy navigation, it’s best to keep your category names short – 1 to 2 word titles. And for a clean look on your blog’s naviga

Grow Your Blog Community

With Wix Blog, you’re not only sharing your voice with the world, you can also grow an active online community. Readers can become engaged members of your blog who like to share their thoughts, ideas and discover interesting people. See All Your Members Readers can easily sign up to become members of your blog and get a personal profile page. Members can follow one another and be followed, they can check out each other’s profiles, see what people have liked or commented on, and get notifications. You can view all blog members by clicking the Members icon in the login bar. Tip: To quickly find individual members, use the Member search bar and sort by option. #dream

How to Delete This Post

Ready to delete this post and add your own? You can do it when you’re logged in to your live site or in Preview Mode. Simply click on the More Options icon (the 3 dots that appears on the post) and hit Delete Post. You can also head to Settings > Manage Posts and delete any post from there. We recommend you first explore what you can do in this blog layout. Click through the category pages to discover some of the great features this blog has to offer and learn a few blogging tips along the way!

Add Images, Videos & Style Your Text

Adding images and videos to your posts is a great way to grab readers’ attention. Writing a text post? You can style it too with bold, italics, quotes & more! Looking for fresh design options? Then we’ve got you covered. Make each post look exactly the way you want by styling your text. Images & Videos You can also customize the look of your videos and images. Make them widescreen or small - whatever you prefer. You have complete control of how your post will look on desktop and mobile. Paragraph Alignment You can align your paragraphs left, right or center and place them to the right or left of your images. Subtitles & Quotes Add subtitles to let readers easily skim longer posts or quotes t

Hashtag Your Posts

Love to #hashtag? Good news! You can add tags (#vacation #dream #summer) throughout your posts to reach more people. Why hashtag? Hashtags are like labels for content that people can search with to find relevant posts. Using hashtags can expand your post reach and help people find the content that matters to them. So go ahead and #hashtag away! Tip: Use hashtags to describe what your post is about.

Add Blog Writers

Adding writers is a great way to bring more fresh and diverse content to your blog. Whether you’re running a small business or a large magazine publication, add multiple writers to grow your content and keep it fresh and diversified. You know what they say, content is king so bringing more contributing voices to the topic at hand is an effective way of turning your blog into a thriving online community. You can turn any existing member into a writer for your blog and manage them. Writers can create new posts and manage their comments. Here’s how to do it: Head to your Member’s Page Search the member you want to make a writer Click on the member’s profile Click the 3 dot icon on the Follow bu

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