September is Leukodystrophy Disease Awareness Month! What Do You Know About It?

What is Leukodystrophy? Leukodystrophy causes the myelin, or “white matter,” of the brain to progressively decline. Myelin, which acts as an insulating cover over nerve fibers in our brains, is responsible for the correct and fast movement of nerve impulses. The less myelin present, the slower information travels between nerve cells. Some people with a leukodystrophy are born with symptoms or have them from a very young age while others don't develop them until later in life. Symptoms might include seizure activity, loss of motor function, and eventual loss of self-care skills. All forms of the disease are progressive, which means they worsen over time, and all forms are currently incurable.

Family. Research. Hope.

October 5th marks the sixth birthday of the Global Foundation for Peroxisomal Disorders. In just six short years, we have made tremendous progress in Peroxisomal disorder research, supporting families facing a Zellweger spectrum disorder, and raising awareness of Peroxisomal Biogensesis Disorders in the Zellweger Spectrum. To help celebrate our recent growth and achievements, we are unveiling a new logo for GFPD which compliments our momentum, focusing on the people that are the heart of our community—our families, scientists, and physicians. No matter what our logo looks like, our mission is our brand, and our new tagline reflects that mission perfectly: Family. Research. Hope. Thank you f

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P.O. Box 33238

Tulsa, OK 74153

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phone: ‪(405) 418-6061‬

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