More than a Race, Ilan-a-thon is a Celebration

Following June's Ilan-a-thon Family 5k, a friend of Ilan and his family shared some thoughts on what makes the event so special for everyone involved. Our thanks to Bonny Ghosh for sharing. I remember sitting next to Ilan in the ICU, meeting his gaze to see if he was enjoying the Elmo book I was reading him. Half a decade has passed since I looked into his precious face. Yet this many years later, it’s heartwarming to see the growing number of friends and family members who travel from different parts of the country to band together for the fight against Peroxisomal Biogenesis Disorders and participate in Ilan-a-thon. It’s a wonderful event that not only helps keep Ilan in our hearts and min

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