A Community Rallies Around the Chapman Family

I attended the first annual Tee it Up for the GFPD in honor of two-year-old Max Chapman. The event included a Silent Auction reception on Wednesday night and a Golf Scramble and Reception on Thursday. I awoke on Friday with sore muscles, but still a huge smile and warm feeling in my heart. Todd Chapman, Tee It Up for the GFPD organizer, described the event as a miracle. I felt the magic in the air, the energy and excitement. It was palpable. That electric feeling was hope, SO much hope. I have known Max’s parents, Todd and Corin Chapman, since the beginning of their relationship. We became friends in college and have had similar life paths since; marriage, buying houses, and having childre

Grandmother Writes Book to Raise Awareness and Funds for the GFPD

Ann Duquette is a children’s book author, educator, dog lover and grandmother to Riley (age 4) and Madalyn Duquette (age 2). Prior to her first grandchild’s birth, Ann was hiking in her home state of Maine with her Yorkshire terrier, Sam, and was impressed by the little dog’s stamina. “I swear that dog believed he was a Yellow Lab,” she says. Despite Sam’s determination to explore challenging trails on four little legs, Ann worried that an owl or hawk could easily pick him up and fly away. The thought stayed with her and Ann wondered if she could make an adventure story out of it someday. When Riley was diagnosed with Zellweger Spectrum Disorder several months after his birth in May 2012, An

GFPD Partners to Fund Research at NCATS

The GFPD has partnered with the Wynne Mateffy Research Foundation to fund a research project at the National Institutes of Health (NIH). This partnership will support a postdoctoral fellowship for research at the National Center for Advancing Translational Sciences (NCATS), using high-throughput drug screening to uncover therapies for children with PBD-ZSD. Find the position posting in Science: http://jobs.sciencecareers.org/job/409103/post-doctoral-fellowship-at-the-national-institutes-of-health-nih-/

#GFPDisFamily Video Premiers

Attendees at the Tee It Up For The GFPD reception and auction got a first look at our new GFPD Family video tonight. Check it out and please share to help get the word out about the all the amazing kids and families that make up the GFPD. Supporting the GFPD supports these families. ‪#‎GFPDisFamily‬ ‪#‎YearofthePeroxisome‬

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P.O. Box 33238

Tulsa, OK 74153

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phone: ‪(405) 418-6061‬

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 Images on this site were contributed by families and may not be used without permission.

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