GFPD Receives NORD Grant to Conduct Natural History Study

We are excited to announce that the GFPD has been awarded a grant to undertake a Natural History Study project with the National Organization for Rare Disorders (NORD), funded in cooperation with the Food and Drug Administration (FDA). Our Primary Investigator, GFPD Medical and Research Liaison Dr. Mousumi Bose, will work with a Scientific Advisory team including Dr. Nancy Braverman of McGill University, Dr. Joe Hacia of University of Southern California, and Jessie Kulaga-Yoskovitz of McGill University. Together with this team, the GFPD will build a database of experiences and outcomes for patients with Peroxisome Biogenesis Disorder – Zellweger Spectrum Disorder (PBD-ZSD). The importance o

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