The GFPD in 2016: Looking Ahead to the Year of the Peroxisome

The New Year is here and we at the GFPD have hit the ground running, with lots of work underway and upcoming in the months ahead. As the terms of several of our original board of directors have come to an end, we are looking forward to welcoming new members and have said goodbye to some who have helped grow the GFPD from a small idea to the successful patient support and research foundation that it is today. In the days before the GFPD was founded, families were just beginning to use the Internet to connect, discovering that other families like theirs were out there. John Harris moderated an email listserv for families whose children’s symptoms were mostly at the moderate or mild end of th

PBD-ZSD Treatment Guidelines published in collaboration with GFPD

In a years-long effort, GFPD Family and Scientific Liaison Dr. Mousumi Bose has headed up a collaborative project with the GFPD Medical and Scientific Advisory Board, to prepare treatment guidelines for the PBD-ZSD population. Dr. Bose explains, "The expertise and insight documented in these guidelines will be a tremendous resource, as local physicians and specialists will, for the first time, have access to best practices and information about treatment and patient outcomes.” The manuscript, “Peroxisome Biogenesis Disorders in the Zellweger Spectrum: an overview of current diagnosis, clinical manifestations, and treatment guidelines” has been published online by Molecular Genetics and Metab

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