July 30th Proclaimed Zellweger Disorder Awareness Day in Indiana

We are very moved today at the news that Levi Mayhew’s family, in a time of great grieving, has had July 30th proclaimed Zellweger Spectrum Disorder Awareness Day in the state of Indiana. We shared Levi’s story with you last winter when he gave his Make-a-Wish trip to his friend Emma because he was too sick himself to go. Emma’s trip with Make-a-Wish on Levi’s behalf launched what became known as the Flat Levi project, as people downloaded a cut-out “Flat Levi” and shared pictures they took with him around the world. We are heartbroken to share with our families and friends that Levi passed away this week, just before his 7th birthday. All of our condolences are with Levi’s family, as well a

Ilan-a-thon 5k 2015 Goes Virtual

We’re really pleased to announce that this year’s Ilan-a-thon 5k is a virtual event that you can participate in wherever you are! Visit the Ilan-a-thon Jive-K event page to learn how you can get involved to raise awareness about peroxisomal disorders in the Zellweger spectrum. Our great thanks to Ilan’s family for their continued efforts to support research in their son’s memory. Use hashtag #ilanathon2015 and tag @ilan_a_thon and @GlobalFoundPD to share your pictures! https://www.facebook.com/events/101302120213567/

2015 GFPD Dinner Dance in Honor of Adrian and Diego Alfaro Planned

Planning for the 2015 Dinner Dance benefiting the GFPD and honoring the memories of Adrian and Diego Alfaro is underway. Please mark your calendars for October 24, 2015 in Modesto, CA. More information about this third fundraiser held by the Alfaro family can be found at http://diegoandadrian.com/Events.php and on Facebook at http://www.facebook.com/events/445865698931159/

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