GFPD Medical Advisory Board Member Awarded NIH Grant

Congratulations to GFPD Medical Advisory Board member Dr. William Rizzo who has received a five year, $3.3 million grant to study rare diseases, including Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder. GFPD President Shannon Butalla contributed a letter of support of Dr. Rizzo’s work to help secure the grant funds from the National Institute of Health, National Center for Advancing Translational Sciences (NCATS). Read the press release from the University of Nebraska Medical Center and an article in the Lincoln Journal Star for comments from Dr. Rizzo and Shannon Butalla on how the grant money will advance

GFPD Family Organizes Vigil for Infant Loss Rememberance Day

Meagan Holt, mother to Madeline and Olivia, organized a candle lighting event in Everett, WA to mark Pregnancy and Infant Loss Remembrance Day. Meagan organized the event in part to remember her three children who were lost in or before infancy. She also has one daughter with PBD and one unaffected daughter. Read more about Meagan’s family and the event she organized in this article from the Everett Herald.

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