2015 GFPD Family and Scientfic Conferene
The 2015 GFPD Family and Scientific Conference was held July 17-21 in Omaha, Nebraska

 

 

See more pictures in the Event Gallery

 

Video and presentation slides will be available for the following presentations:

 

 

Friday, July 17

 

  • Opening Remarks & Welcome

  • Shannon Butalla, President & Melissa Gamble, Treasurer              

  • GFPD Updates & Year in Review
       Mousumi Bose, PhD, Medical & Scientific Liaison

 

Video of Opening Ceremony includes presentaions from Shannon Butalla, Melissa Gamble, Mousumi Bose, and Geoff Edgar.

 

GFPD Families and Friends Video

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Saturday, July 18

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  • PBD – ZSD Introduction

  • Nancy Braverman, MD, McGill University & Gerald Raymond, MD, University of Minnesota

  • Presentation Slides
     

  • Cholbam for Patients with PBD

  •           James Heubi, MD, Cincinnati Children’s Hospital
     

  • Overview of Deaf-Blindness
            Linda Alsop, Utah State University

  • Presentation Slides
     

  • Deaf-Blind Advocacy & Education
             Linda Alsop, Utah State University

 

Sunday, July 19

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  • Recap from the International Peroxisome Meeting

  • Mousumi Bose, PhD, GFPD Medical and Scientific Liaison, Nancy Braverman, MD, McGill University, Rick  Rachubinski, PhD, University of Alberta, William Rizzo, MD, University of Nebraska Medical Center  
           

  • PBD-ZSD & Bone Disease
               Eric Rush, MD, University of Nebraska Medical Center

  • Presentation Slides

  • Video (view on Youtube)

 

 

Monday, July 20

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  • Hearing Issues and Technology Considerations

  • Carisa Reyes, Aud.D., CCC-A, Boys Town National Research Hospital

  • Presentation Slides

  • Pediatric Hospice and Palliative Care

  • Sue Bace, LICSW, Omaha Children’s Hospital and Medical Center