2015 GFPD Family and Scientfic Conferene
The 2015 GFPD Family and Scientific Conference was held July 17-21 in Omaha, Nebraska



See more pictures in the Event Gallery


Video and presentation slides will be available for the following presentations:



Friday, July 17


  • Opening Remarks & Welcome

  • Shannon Butalla, President & Melissa Gamble, Treasurer              

  • GFPD Updates & Year in Review
       Mousumi Bose, PhD, Medical & Scientific Liaison


Video of Opening Ceremony includes presentaions from Shannon Butalla, Melissa Gamble, Mousumi Bose, and Geoff Edgar.


GFPD Families and Friends Video

Saturday, July 18

  • PBD – ZSD Introduction

  • Nancy Braverman, MD, McGill University & Gerald Raymond, MD, University of Minnesota

  • Presentation Slides

  • Cholbam for Patients with PBD

  •           James Heubi, MD, Cincinnati Children’s Hospital

  • Overview of Deaf-Blindness
            Linda Alsop, Utah State University

  • Presentation Slides

  • Deaf-Blind Advocacy & Education
             Linda Alsop, Utah State University


Sunday, July 19

  • Recap from the International Peroxisome Meeting

  • Mousumi Bose, PhD, GFPD Medical and Scientific Liaison, Nancy Braverman, MD, McGill University, Rick  Rachubinski, PhD, University of Alberta, William Rizzo, MD, University of Nebraska Medical Center  

  • PBD-ZSD & Bone Disease
               Eric Rush, MD, University of Nebraska Medical Center

  • Presentation Slides

  • Video (view on Youtube)



Monday, July 20

  • Hearing Issues and Technology Considerations

  • Carisa Reyes, Aud.D., CCC-A, Boys Town National Research Hospital

  • Presentation Slides

  • Pediatric Hospice and Palliative Care

  • Sue Bace, LICSW, Omaha Children’s Hospital and Medical Center