
The 2015 GFPD Family and Scientific Conference was held July 17-21 in Omaha, Nebraska
See more pictures in the Event Gallery
Video and presentation slides will be available for the following presentations:
Friday, July 17
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Opening Remarks & Welcome
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Shannon Butalla, President & Melissa Gamble, Treasurer
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GFPD Updates & Year in Review
Mousumi Bose, PhD, Medical & Scientific Liaison
Video of Opening Ceremony includes presentaions from Shannon Butalla, Melissa Gamble, Mousumi Bose, and Geoff Edgar.
GFPD Families and Friends Video
Saturday, July 18
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PBD – ZSD Introduction
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Nancy Braverman, MD, McGill University & Gerald Raymond, MD, University of Minnesota
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Cholbam for Patients with PBD
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James Heubi, MD, Cincinnati Children’s Hospital
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Overview of Deaf-Blindness
Linda Alsop, Utah State University -
Deaf-Blind Advocacy & Education
Linda Alsop, Utah State University
Sunday, July 19
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Recap from the International Peroxisome Meeting
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Mousumi Bose, PhD, GFPD Medical and Scientific Liaison, Nancy Braverman, MD, McGill University, Rick Rachubinski, PhD, University of Alberta, William Rizzo, MD, University of Nebraska Medical Center
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PBD-ZSD & Bone Disease
Eric Rush, MD, University of Nebraska Medical Center
Monday, July 20
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Hearing Issues and Technology Considerations
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Carisa Reyes, Aud.D., CCC-A, Boys Town National Research Hospital
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Pediatric Hospice and Palliative Care
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Sue Bace, LICSW, Omaha Children’s Hospital and Medical Center