The 2015 GFPD Family and Scientific Conference was held July 17-21 in Omaha, Nebraska

 

 

See more pictures in the Event Gallery

 

Video and presentation slides will be available for the following presentations:

 

 

Friday, July 17

 

• Opening Remarks & Welcome

• Shannon Butalla, President & Melissa Gamble, Treasurer              

• GFPD Updates & Year in Review
     Mousumi Bose, PhD, Medical & Scientific Liaison

 

Video of Opening Ceremony includes presentaions from Shannon Butalla, Melissa Gamble, Mousumi Bose, and Geoff Edgar.

 

GFPD Families and Friends Video

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Saturday, July 18

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• PBD – ZSD Introduction

• Nancy Braverman, MD, McGill University & Gerald Raymond, MD, University of Minnesota

• Presentation Slides
   

• Cholbam for Patients with PBD

•           James Heubi, MD, Cincinnati Children’s Hospital
   

• Overview of Deaf-Blindness
          Linda Alsop, Utah State University

• Presentation Slides
   

• Deaf-Blind Advocacy & Education
           Linda Alsop, Utah State University

 

Sunday, July 19

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• Recap from the International Peroxisome Meeting

• Mousumi Bose, PhD, GFPD Medical and Scientific Liaison, Nancy Braverman, MD, McGill University, Rick  Rachubinski, PhD, University of Alberta, William Rizzo, MD, University of Nebraska Medical Center  
         

• PBD-ZSD & Bone Disease
             Eric Rush, MD, University of Nebraska Medical Center

• Presentation Slides

• Video (view on Youtube)

 

 

Monday, July 20

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• Hearing Issues and Technology Considerations

• Carisa Reyes, Aud.D., CCC-A, Boys Town National Research Hospital

• Presentation Slides

• Pediatric Hospice and Palliative Care

• Sue Bace, LICSW, Omaha Children’s Hospital and Medical Center