We Provide Worldwide Support to patients and families impacted with Peroxisomal Disorders.
When the GFPD was incorporated and received its 501(c) (3) public charity designation in 2010, we were a small parent support group of approximately 50 families. Twelve years later, the GFPD connects more than 600 families from over 40 countries, and we have Medical and Scientific Advisers comprised of leading researchers and physicians in the field of peroxisomal disorders. Our biennial Family and Scientific Conferences bring together families and professionals from around the world to meet and collaborate on ways to improve the lives of patients with peroxisomal disorders.
We are Helping Hands
Our Mission
To improve the lives of individuals with Peroxisomal Disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.
Our Work
Through these connections with medical and scientific professionals and family support networks, our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum.
Our History
In the days before the GFPD was founded, families were just beginning to use the Internet to connect, discovering that other families like theirs were out there. John Harris moderated a website and an email list-serve for families.
40
Countries Reached
3,400
Supporters on Facebook
600
Registered Families
Over 1 Million
Invested in Scientific and Medical Research since 2010
Take Action
Do you have an event idea, but don’t know where to get started? We are here to help bring your event idea to life! We can provide fundraising resources and GFPD branded materials to ensure that your event is a success. Complete the form here to tell us about your event idea, and we will contact you to get started!
