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About Us

Peroxisomal Biogenesis Disorder (PBD) refers to disorders in the Zellweger Spectrum, which include: Infantile Refsum Disease (IRD), Neonatal Adrenoleukodystrophy (NALD), and Zellweger Syndrome.  PBDs are rare, genetic, metabolic, terminal conditions affecting all major systems of the body.  Children with PBDs commonly experience sensorineural hearing loss, vision loss, hypotonia (low muscle tone), seizures, developmental delays, liver and kidney issues, problems with bone formation, feeding issues, and adrenal insufficiency.

The Global Foundation for Peroxisomal Disorders (GFPD) is committed to assisting families faced with PBDs and providing funds for research.  We accomplish this mission by organizing family conferences, providing an online family support group, facilitating an equipment exchange program, and providing educational resources for families and professionals.

Join our fight to make a better world for children with PBDs by becoming a member of GFPD.  As a member of GFPD, you will receive our quarterly newsletter with updates on research and GFPD activities.

Although a fee is not required for membership in GFPD, your contribution will help further our goals. To donate via paypal to GFPD, please click HERE.